Cardiologist Appointment #2

Daisy and I headed into her to see her cardiologist for the second time today.  We had weaned off digoxin after the first visit and there have been no issues.  We are now cleared to wean off the propranolol, woohoo!  We will be removing one of the 3 doses starting tonight.  We give her the propranolol at 8AM, 4PM, and Midnight.  I will give you one guess which one we will be removing first.. haha.  We will remove the next dose in 48 hours... then the final dose 48 hours after that.  Once we have weaned completely we will be headed back to the hospital to get a halter monitor for Daisy.  This neat device will record her heart for 24 hours to a little data recorder.  If her heart looks clean for 24 hours, we won't have to call the cardiologist anymore... :-)

We engaged with the Alta regional center to assist us in tracking Daisy's development.  Her case was reviewed by the regional center and she will be taken into the program.  We will have a team of 4 folks coming to the house soon to begin the process.  We are excited to begin working with these folks.  We have a family member and a friend who has worked with Alta regional centers before and had very positive things to say.

Daisy has been doing quite well.  She loves all the attention she can get from her Momma, her Brother, and of course her Daddy.  She has really found her smile over the last couple of weeks... which is just wonderful to see!  She loves to sleep in the arms of Momma or Daddy for daytime naps and has been sleeping pretty well in her bed at night.  She sleeps much better at night than her brother did at this age :-)  She weighed in at 12lbs 8 ounces today and is starting to chub up...exactly what we want to see.  She has become too long/tall for her bassinet and is now snoozing in her crib at night.  She last measured at 23.5 inches but I would guess that we have added to that since her last measurement.

We are slowly venturing out a tiny bit into the world with Miss Daisy.  We went to our first play date since this all occurred, we have been to target, and went on a walk around the neighborhood.  Yes I know we are sure daredevils, haha.

Our Keppra wean continues, we are about 3.5 weeks from being at the 50% level and another conversation with our neurologist.  We have also managed to finally get all the MRI and ultrasound imagining sent to our neurologist.  This is a much larger (unnecessarily) task than it would seem.  We are excited to hear what our Doc has to say after reviewing the material.  More to come.