Keppra tastes terrible....

Daisy received her last dose of methadone @ 8PM tonight.  We are hopeful that she will do well without anything further.  Her Keppra (anti-seizure) has been very challenging.  There is something in there that my little girl just does not like.  With a single drop mixed with Cherry syrup she will throw up.  When she is gagging and throwing up her heart rate dips a bit... I guess this is expected behavior but certainly not easy on her parents.  We continue to look for more effective ways to get this down the hatch 2x per day.  Unfortunately this med comes in pill, oral solution, and IV drip.  I was hoping to find suppository on the list.... sigh.

Christina followed up with the cardiology team today and we will continue her heart meds until we meet with an outside cardiologist 2 weeks from when we get home.  EKG and all other items look great heart wise.

Daisy continues to nurse well.... and have great output which are all very good things.

We have been in the hospital now for 26 days which is a lot harder than it sounds.  My wife has been simply amazing in helping me care for our family and provide each kiddo with equal Mommy and Daddy time.  In order to accomplish this Christina and I only see one another a couple of hours each week.  While this is a sacrifice we gladly make it does start to wear on both of us after a while.  This entire week Christina has been at the hospital as I try and shake this cold.  She is an amazingly strong woman and has been managing Daisy's care like no other.  I am a lucky man to be married to woman of this caliber.