What comes next....

We have been home with Daisy 48 hours now and it has been great having everyone at home.  She has spent 50% of her life in the hospital at this point so bringing her home was like bringing her home after birth all over again.  I took her for her after hospital check yesterday and 2 month appointment today (she did not care for her vaccinations).  She is now nearly 11 pounds.. and 22.5 inches long.  She was 7 pounds 6 ounces at birth and 19 inches long.  I do believe she will be a tall one just like her brother.  We are concentrating on getting her big, robust, and healthy.  We have two main areas that we are concentrating on going forward.

1.  The brain:  We are looking for a great pediatric neurologist and we think we may have found one at UC San Francisco.  We are anxious to meet and begin talking with him.  Our first order of business is to get cleared for the DTaP vaccine as our pediatrician wanted to get clearance from the neurologist before administering this preventative vaccine.  We are also excited to get started with the Alta regional center.  This will help us in finding the right providers, and therapies to track Daisy's development and assess the impact of the low oxygen damage on her development.  Huge thanks to a friend of mine for getting us way ahead of the game here, you rock sir!

2.  The heart:  We strongly believe that the SVT episodes were caused by a slightly deep PICC line tickling the heart.  The UCD cardiologist seems to agree with us but they wanted us to follow up with another cardiologist before we could look at discontinuing the medications.  We will be meeting with another UCD cardiologist very shortly to look at this.

Daisy is still feeling the effects of a good period on the sedative (which is a pretty heavy narcotic) and then being stepped off the sedative with methadone.  She is a little crabby at time which is likely to continue for the next 3-4 weeks.

Christina and I have really been enjoying her smiles since she got home.  She does seem to be much more at peace since arriving home.  Jeremiah is very happy to have his sister home... maybe a bit too excited :-)  We will likely be keeping to ourselves indoors for a bit.  We are almost all sickness free... and I would like to have an extended period of wellness for the 4 of us.