Daisy remained largely the same Wednesday, Thursday, an Friday. We would have periods where we could come down on meds only to go back up a couple hours or even a day later. We would be able to come down on ventilator pressures.... only to go back up... at times higher than we were when we were able to get down. We celebrated the small steps forward even if they were followed by small steps backward. Each morning when Christina and I attend rounds there is talk of moving her from the heavier duty oscillator ventilator to the standard ventilator. Unfortunately there always seems to be something in the way.... blood pressure, too much fluid retention, etc. By Friday Daisy has put on greater than 6lbs of water/fluid due to the meds, the oscillator, and the fact that she has been medically paralyzed (moving around help you get rid of excess water on the body). The poor girl resembles a sumo wrestler at this point. She is super puffy and we loves every inch of her puffiness. Her mother and I could not be more proud of the small steps forward she has taken. Overall she has been able to ween down on some meds at this point.
Jeremiah was released from the hospital late Wednesday evening. I would happy to have him home where he can get some uninterrupted sleep. All of the noise and goings-on in the hospital is much different than our quiet home and he has been sleeping very poorly. Tamiflu, albuterol, and inhaled steroids are the orders.
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