Friday, January 17, 2014

Our little fighter

A nice calm day today for Daisy... she continues to work hard at getting off the limited oxygen support she is on and weening down on the meds that she will need to ween off of.  She got another EKG for the cardiac team tonight... they are trying to be darn sure that it was the PICC that was causing the SVT issues I talked about earlier.  Since the PICC was pulled back 1cm we have not had the problem recur.  The PICC has since been removed.

She really has made remarkable progress since this all began.  After the cardiac and respiratory arrest Daisy was unable to maintain a large portion of her vital functions on her own.  She needed machines, or meds to just maintain life.  She has received fresh platelets several times, a blood transfusion, several dozen meds to make her body and systems work properly and heal.  She also received meds to medically paralyze her and strong narcotics to sedate her.  One of our Pediatrician's at the hospital and I were tracing back over the last three weeks today.  She is quite pleased and surprised at the rate of her progress.  We will have years before we know the full impact of this nightmare Christina and I could not be more proud of how hard she is fighting and seemingly winning :-)

2 comments:

  1. That's cuz she's a tough little cookie! You better watch out when she gets older- she will be someone to reckon with! ;-) nana is so proud of you Daisy girl! You have made such great strides and I know you are going to be just fine! Nana loves you baby girl! Hugs and kisses!

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