Sunday, January 12, 2014

The path to recovery is a rough one

Our poor Daisy had 2 high heart rate episodes today.  The episodes are caused by a condition called SVT (Supraventricular tachycardia).  They believe she will grow out of it.... but boy is it scary.  They also believe that it is likely inherited.  Daisy's care team was not able to lower her heart rate with the ice this morning (dive reaction) it took a couple shots of meds to get it back into acceptable levels.  You can read more about SVT here if you are interested http://en.wikipedia.org/wiki/Supraventricular_tachycardia

Her care team is also having a heck of a time getting an IV in today.  Since we lost the arterial line we have lost the ability to get blood for lab work without poking the poor girl every time.  They tried the head, left hand, and neck today without success.  Little babies have tiny little veins and arteries and it makes them a very hard stick.  We pray that they are able to find a suitable place for an IV soon.  Our poor sweetheart was so upset and it kills us to watch her in pain.

At rounds this morning the docs are happy with Daisy's overall progress and believe we are heading in the right direction.  They are going to work to get even more fluid off of her as they believe this is one of the main contributors to her failing her ERT (extubation readiness test).  Once she is cleared to get off the ventilator we can get the MRI of her brain done (she still needs to be on the ventilator during the MRI).

Your continued thoughts and prayers are truly appreciated, thank you.

2 comments:

  1. Our precious sweet Daisy I am so sorry that you have to go through this! I would trade places with you in a heartbeat if I could! Just know you are a very strong girl and you can do this! Nana is rooting for you and is praying for you constantly! We love you so much and mommy and daddy and brother as well! Soon I pray this will all be over for you and mommy and daddy and brother and you will all be home again and you will be fine and growing like a little weed!

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  2. My sweet little niece im praying for you sweet baby .

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