Stay the course

Daisy's central line continues to give her some problems.  They are going to establish a PICC tomorrow morning to replace the central line as the primary med delivery IV.  Central lines are apparently good for about 2 weeks.  We are at 11-12 days.  They have discontinued the use of the central line for all but the minimal to keep it open.  Her ventilator settings continue to be very stable on very low settings, this is great news.  I met with both the PICU doc and Neurology docs today regarding a MRI, both docs were helpful in providing the information I required in order to have meaningful conversations with my beautiful wife.  The MRI will help us see any smaller brain bleeds not seen in the ultrasound, see any areas that could potentially cause seizures, and will allow us to identify any damage to the brain.  The location of the damage (if any) will give us a quicker path to therapy.  Her neurology serial exams (in person) look pretty positive so far.

Right now we continue to work to get all the water weight off little Daisy (she has made some major strides here).  We are working to rid her of any lingering flu and any new infections.  We are working to get her off the ventilator as soon as her body is ready to do all her own breathing.

Christina and I are enjoying gazing into her eyes during periods of alertness, it almost seems as though she is trying to speak to use through her eyes and facial expressions.